האקדמיה הלאומית הישראלית למדעים The Israel Academy of Sciences and Humanities - Genetic Information
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Genetic Information

Genetic information is the information coded in the DNA or RNA sequence of nucleic acids. Information regarding the genetic status of an individual or a genetic disease that he or she has may derive from a variety of sources, including genetic diagnosis ; results of genetic tests; the manifestation of an illness or genetic disorder in the individual or any of his family members – that is, the “family medical history”; participation in genetic clinical research; and genetic information concerning a fetus.

 

Selected ethical issues:

 

  •  The method of obtaining the information and its potential harm to the individual – the source of the information.
  • What does the information reveal?
  • What is the received information’s level of certainty, and how may it be interpreted?
  • Disclosing information to third parties (family members, insurers, employers, and so on).
  • The obligation to disclose genetic information versus the individual’s right to privacy.
  • The right of an individual not to know genetic information about him/herself or descendants.
  • Genetic-based discrimination (due to exposure of an individual’s genetic information)

 

 

Sources:

https://www.eeoc.gov/laws/types/genetic.cfm

https://en.oxforddictionaries.com/definition/genetic_information

https://www.alrc.gov.au/publications/3-coming-terms-genetic-information/what-%E2%80%98genetic-information%E2%80%99

http://www.biology-online.org/dictionary/Genetic_information

https://www.alrc.gov.au/publications/6-ethical-considerations/genetic-information-and-ethics